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When Cystic Fibrosis Hits the Lungs, HIT BACK
When cystic fibrosis hits your lungs hard, hit back. Everything you need to know about getting your lungs back into shape is ...
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Enid's Cystic Fibrosis Clinical Trial Offers Hope
By the time Enid Katz was two years old, she had already suffered through several bouts of bronchitis and was always hungry, ...
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Call for children with cystic fibrosis and rare genes to gain access to life-saving therapy
Some people with cystic fibrosis still do not have access to the life-changing modulator therapy drugs, despite wider EMA ...
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‘Time is precious’ – children with rare cystic fibrosis gene denied access to potentially life-extending therapies
Children whose cystic fibrosis is caused by a rare gene variant are excluded from a new treatment which could potentially ...
Vertex Pharmaceuticals' SWOT analysis: cystic fibrosis leader faces pipeline challenges
Vertex Pharmaceuticals (NASDAQ:VRTX), a global biotechnology company with a market capitalization of $119.1 billion known for its transformative cystic fibrosis (CF) treatments, finds itself at a ...
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Allison John: GP with cystic fibrosis who campaigned on organ donation
Allison John and Rocky When Allison John was 13 and watching the science programme Tomorrow’s World , a segment on gene therapy came up. This was cutting edge stuff in the early 1990s and John had ...
News Medical on MSN2d
Lurie Children's launches campaign to raise awareness of newborn screening
Ann & Robert H. Lurie Children's Hospital of Chicago launched a newborn screening awareness campaign, with signage on public transit and billboards across Chicago urging parents to contact their child ...
'I have that guilt': I'm A Celeb star Reggie Bird opens up about her son's battle with the genetic disorder cystic fibrosis
I’m A Celebrity…Get Me Out Of Here star Reggie Bird has opened up about caring for her son with cystic fibrosis and says she ...
Woman with cystic fibrosis to embark on 3,200 mile row across Atlantic Ocean in historic world-first
Sophie would make a world record for being the first man or woman with cystic fibrosis to row across the Atlantic, while at ...
Can you get disability benefits for cystic fibrosis? 3 things to do if your claim is denied
If you receive a denial letter from your insurer, don’t appeal the decision before seeking legal advice, says a leading ...
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Lurie Children’s campaign urges parents to follow up right away if newborn screening results are abnormal
Ann & Robert H. Lurie Children’s Hospital of Chicago launched a newborn screening awareness campaign, with signage on public transit and billboards across Chicago urging parents to contact their child ...
Irish Independent on MSN10d
Wicklow mother calls for access to life-saving therapy for son with rare form of Cystic Fibrosis
A Wicklow mother is among a concerned group of parents who are calling for individual trials of the modulator therapies for ...