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Rare Disease Companion (RDC) is a network of news and information websites that supports people living with rare diseases. Through accurate, authentic, and compassionate news coverage, feature-length articles, and patient-friendly educational material, RDC provides insights into living with rare diseases at every point along the patient journey.
Weekly MCA Doppler monitoring for my HDFN-affected infant
May 3, 2024 · Based on this information, a Multiples of the Mean (MoM) is calculated. A measurement of 1.5 MoM or higher indicates anemia. In my case, the MoM increased weekly until it reached the 1.5 MoM at 29 weeks gestation. Every other week, the maternal fetal medicine doctor would also conduct a biophysical profile (BPP) and growth scan.
- HDFN Companion
HDFN Companion is part of Haymarket Media’s Rare Disease Companion network of websites, which fills the wide informational gaps that exist for rare disease patient communities on the web. HDFN Companion provides mothers who have the HDFN diagnosis and their families with news, educational materials, and trustworthy insights that give them the ...
A guide to cord blood banking and HDFN
Dec 29, 2023 · Cord blood is the blood that remains in the placenta and the umbilical cord following a baby’s birth. The rope-like structure known as the umbilical cord connects the mother to the unborn baby throughout a pregnancy. Once the baby is born, the placenta is usually discarded, together with the cord blood that is contained within it.
Study shows changes in HDFN statistics over two decades
Oct 4, 2024 · “The aim of the study is to report the outcomes in women undergoing intrauterine transfusions (IUT) for fetal anemia due to rhesus alloimmunization over the last two decades, over [three] time periods from 2002 to 2021 and to report the prevalence of minor antibodies at our center and their effect on perinatal and neonatal outcomes,” the authors wrote.
Prognosis of HDFN - HDFN Companion
Before their introduction in 1968, the death rate of babies affected by HDFN was around 50%.The rate dropped to 0.5% after the introduction of the injection.
Nipocalimab delivers positive results for HDFN in mid-stage trial
Oct 20, 2023 · Nipocalimab delivers positive results for HDFN in mid-stage trial. Nipocalimab, a investigational therapy currently in clinical development, has shown promising results and could prevent complications in pregnancies with hemolytic disease of the fetus and newborn (HDFN), according to a recently published study in Obstetrics and Gynecology. HDFN ...
The role of genetic testing and counseling in HDFN
Sep 9, 2024 · The most common cause of HDFN is a Rh incompatibility in which the mother is RhD-negative and the fetus RhD-positive. In recent decades, the sysematic administration of Rh(D) immunoglobulin to RhD-negative pregnant women has dramatically reduced the incidence of RhD-associated HDFN.. However, if the fetal genotype is not RhD-positive, the administration of Rh(D) immunoglobulin is unnecessary.
Survey shows methods for monitoring HDFN risk vary across US
Sep 18, 2024 · Survey shows methods for monitoring HDFN risk vary across US. Authors of a recent survey found greater standardization of laboratory testing protocols is needed across the U.S. for those at risk of HDFN. There is wide variability in laboratory practices among institutions in the United States for monitoring the potential risk for hemolytic ...
HDFN in twins and multiples: risks and what to expect - HDFN …
Jan 22, 2024 · Twins conceived via assisted reproductive technology may risk increased disease severity. As in single baby pregnancies, the main symptom of HDFN in twins and multiples in utero is fetal anemia, which can lead to life-threatening hydrops fetalis (edema). First-line treatment for fetal anemia is an intrauterine transfusion of donor blood.